guy2

A Surprise!

I received a very unexpected gift yesterday. I was sort of waiting on a CD I had ordered. So when [personal profile] loracs told me I had a package, I assumed that that was it. The box was overkill for a CD, but Amazon can be odd in their ideas of appropriate packaging. On opening it I found *bacon*! (is that a heavenly choir I hear?) Three packages of bacon in different flavors. One is hickory, another is called butter (I’ll have to try that one first). The third flavor I don’t remember, but it has the essential ingredient: Bacon! It took me a while to figure out where it came from, although I had my suspicions. Somehow we misplaced the sender’s name, but we eventually found it. My sweetie, [personal profile] serene sent me the food of the gods.

Years ago [personal profile] serene bought me a bacon-of-the-month-club membership as a present. I think I got more enjoyment out of my then vegetarian girlfriend sending me animal products than I enjoyed the actual meat. The idea tickled me greatly. Anyway thank you so much Buttercup. What a very special gift. I Love you.
guy2

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I'm down with cellulitis the first time in years. I used to get pretty regularly maybe once a year sometimes two. I forgot how crappy it can make me feel. On antibiotics, if I don't feel better by Monday I'll go to the doctor or the emergency room. You whatever works.
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guy2

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Hello Buttercup,
Happy birthday Sweetness. I hope you can do something fun. Though we live far away from each other knowing you is a goodness. Congratulations on another trip around the sun. Love you lots! *Smooches & cuddles*
guy2

(no subject)

Hi there, long time no write. I'm trying to post more regularly again.

Still reading a whole bunch of zombie crap. I seem to be suffering from choice-paralysis. Can't seem to decide what to read or watch or listen to or do most anything. I listen to music by telling Alexa, play music. Then music I like gets played. I don't know where the info comes from on what I like and what I don't like, but she's remarkably good at picking stuff I like. So there is one choice I don't have to make.

I did binge-watch, Orange is the New Black. I had a difficult time getting through the first three seasons, but after that I really enjoyed it. Some very impressing acting on that show. It feels like the end was wrapped up a little too quickly. I get the feeling they were counting on another season, but didn't get it. There were too many storyline beginnings that just ended with a little resolution but not really.

I'm working on getting my study uncluttered. Our floor back there is deteriorating and we need to make some repairs. I'm also working on getting a wheelchair; a new lift, and I would really like someone to look at our electrical. We still have some pretty old connections that I would like to upgrade. I'm looking towards getting solar panels on the roof and hopefully some kind of power backup. Our electricity is fairly reliable, but does go out for short periods of time two or three times a year. Given how much I rely on electricity, I'd like some backup.

I've got a project working on for The Center for Accessible Technology. I'm going to be maintaining their website for people to review, suggest or publicize adaptive tech for people with disabilities. They used to have a fairly thriving community, but it petered out in the last few years. I'm trying to reorganize it and re-energize the place. I'm not sure I have the technical expertise to do what they seem to think I can do. Most of the meetings I've had with them about it has been the trying to reduce their impression of my abilities. Still, it's something to do. That's about it for now hopefully I will post again soon.

PS [personal profile] loracs and I attended a protest in San Francisco of several different groups: people with disabilities, size acceptance folk, LGBTQ etc. demonstrating solidarity with immigrants to this country. It is evil and how we treat those trying to escape the atrocities being perpetrated in South America. Just to separate children from their families and locking people up for no reason except that they wanted to be safe.
guy2

(no subject)

I know you've all been wondering what the heck is going on with [personal profile] stonebender? Well, I'm going to try better at posting here (you've never read that from me before). I have been in one of my more intense funks. I think I'm getting over it. I am no longer taking Spinraza. I am however taking another drug that is an oral medication, called Risdiplam from Roche. It seems to be maintaining what strength I gained under the other drug and it is obviously easier to take than a drug that needed to be delivered with a lumbar puncture. I had to be part of a study in order to get this new medication which entails some not fun hospital visits, but overall I'm happy with the drug situation.

I have not read anything with any intellectual heft in a while now. It's mostly comfort reading which means apocalyptic fiction/old sci-fi/especially Heinlein juveniles. I did read a fun little book called Gregory's World. Which I enjoyed. Fellow crashes on planet that is some kind of Sargasso planet. He finds himself having to survive along with gobs of shipwrecked aliens from lots and lots of places. All stranded and all trying to have a life. It was fun to read and I even bought the sequel.

I re-watched the first four seasons of Fear the Walking Dead seasons. I like this series much more than I did when I first saw it. I have lost some enthusiasm after season 4. I lost a lot of rooting interest since then, but my opinion of the series has greatly improved.

My sister is going through some bad health stuff not helped by breaking her leg recently. I'm trying to help her without doing everything because I think it's important that people be as independent as possible. After surgery to repair her ankle, she is in a rehab facility to recover. In fact it's the same rehab center that my mother went to before she died. It feels oddly homey to me.

That's probably enough for now. More later.
guy2

(no subject)

Yesterday I went to Stanford Medical Center for my second attempt at a lumbar puncture for my third maintenance dose of Spinraza. My injections have not been easy. See, I’m a difficult subject. My spine I mean, otherwise I’m a cool guy to be around. I have severe scoliosis and not many access points for the needle. Consequently, I’ve had to lay on the hard, flat fluoroscope table for long periods of time while the doctor tried to find a way into the spinal canal. There have been many repeated attempts. I think I’ve only had a couple of times where they managed to get me on the first try. Second attempts aren’t unusual, but it’s usually because I can’t lay on the table long enough. Yesterday, the doctor gave up. Apparently, the one or two places they’ve been able to access, closed up.

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guy2

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I haven’t been remarking on my continuing Spinraza treatments. Mostly because the trouble I’ve had in staying on the table long enough to let the doctors find an access point hasn’t changed much. I can’t manage to stay on the table longer than a couple hours and if they can get it done in that amount of time, things work just fine. I have had to reschedule an injection about three or four times now. Yesterday was my seventh shot and I didn’t manage to get it done. It is discouraging to do everything I need to do to get to Stanford and then have to reschedule. I know it’s not my fault, but it’s very difficult for me not to feel responsible. I’m sure a lot of this is internalized male baloney, but there you go.

I really wanted this injection to work, because [personal profile] loracs, my partner, is getting a knee replacement (which is also freaking me out!) on Thursday and she does some of my care and it will be difficult to get to Stanford for another try. I hope all of you are having an easier time of it. I know I’m not alone in the frustration of these treatments can cause at times.
guy2

(no subject)

When Worlds CollideWhen Worlds Collide by Philip Wylie

My rating: 3 of 5 stars


I’m cheap and a little depressed, so I’ve been going through old sci-fi from my youth. This is a book I remember really liking as a child. It seemed like the perfect time for me to reread it. It is definitely a book of its time, the 1930's. It includes some very unfortunate terminology towards the Japanese. Given the time it was written, I feel the authors were attempting to be more open-minded about race and gender. They pretty much miss the mark completely. If the reader can completely ignore our current sensibilities, you might enjoy this book. I enjoyed it, but I probably like it in spite of itself. I really liked the idea of humans needing to leave our planet and live on another planet because Earth was going to be destroyed. If you’re as old as me or like really old science fiction, you might enjoy this book.



View all my reviews
guy2

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Okay, ‘splain it to me. Career lawyers write about the law. Publish their opinions in various school publications, law reviews etc. Kavanaugh wrote lots of stuff about the Supreme Court and their decisions. So, it’s fine to write about Supreme Court decisions when you’re a lawyer. It’s even okay when you are a judge. However, if you are a Supreme Court nominee, you can refuse to talk about what you have already written because some part of an issue may come before you?